Monday, February 17, 2014

A Mother's Instincts

When Felicity was born, her right eye looked rounder than her left eye which in turn made the left eye look a little smaller. I took note but didn't think anything of it because there's a lot of swelling that has to go down days after birth and babies change almost daily, coming into their own. I also know what my eyes look like after a sleepless night or a good cry. 

At about 6 weeks old, her eyes were the same and now I noticed a little dent in her forehead above her right eye. So, I googled randomness such as "dent in babies forehead on one side" and that's the first time I saw the word Craniosynostosis. I read all about the condition and looked at pictures. There was one picture of a baby that looked just like Felicity with her facial features and that's when I noticed that babies left ear also had a little droop to it like my daughters left ear has. I immediately knew my daughter had this condition. It was during the research that I found out that Coronal Craniosynostosis also affects the ear on the opposite side of the face. It's strictly cosmetic and let me just say, I have always and still do love her little unique ear. 

(Backstory: My OB recommended a Pediatrician so I was going to go with him. Before even meeting him, he went out of the country for 3 weeks and had Dr. Vondrak filling in for him. I immediately felt comfortable and trusting and asked that Dr. Vondrak remain her Pediatrician.)

After gathering the information I had found on the internet, I met with Dr. Vondrak. He praised me on my Mothering skills and instincts and agreed that my concerns were valid. He ordered x-rays to be done as the first step and said a CT Scan would follow if there was any indication. He also told me about who he'd refer me to if she did in fact have Craniosynostosis. I am so beyond grateful that he is her Pediatrician! Thankfully he has seen Craniosynostosis before so he was able to talk with me about what I read and the next steps that would be taken. He also encouraged me to NOT google but to instead trust in her doctors and to address my concerns and answer my questions.